Insights from across Fields and around the World

by Catherine A. Marshall, Elizabeth Kendall, Martha E. Banks, and Reva Mariah S. Gover, Editors
Foreword by Thomas Bornemann


This set is an unprecedented presentation of the experience, perception, and treatment of people with physical and psychological disabilities in nations around the globe.

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Cover image for Disabilities

April 2009


Pages 954
Volumes 3
Size 6 1/8x9 1/4
Topics Health & Wellness/General
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In this three-volume set, experts from around the world spotlight the latest research on physical and psychological disabilities, as well as the social, legal, and political issues that come to bear on those people affected. These authors teach us what the disabilities are, how common they have become, what challenges people with disabilities face, what treatments are available, and whether new promising efforts for rehabilitation are on the horizon.

We also learn, in these volumes, about social actions that have advanced human rights for people with disabilities in countries around the world. Yet, we learn that in these same countries, discriminatory actions against people with disabilities continue to occur. The impact of different cultural beliefs about disability are explored and these beliefs are juxtaposed against legislative responses. In all three volumes, people with disabilities share their personal narratives about events they have faced in society. They provide rich examples of how culture, social interactions, and legislation can impact on people.

Table of Contents

Disabilities V1Foreword ixThomas BornemannPreface xiiiPaul LeungIntroduction xixChapter 1. How Rich and Fulfi lled My Life Has Been: A PersonalPerspective of Mobility "Impairment" 1Ela Yazzie-KingChapter 2. Understandings of the Disability Concept: A Complexand Diverse Concept 5Marianne HedlundChapter 3. Disability Harms: Exploring Internalized Ableism 19Fiona Kumari CampbellChapter 4. But Stroke Happens to Older People Doesn't It?The Experiences of "Young" People Following Stroke 35Tara Catalano and Elizabeth KendallChapter 5. "Come Sit with Me; Let's Yarn Together for aLittle While": Resilience Factors in FacingCardiovascular and Emotional Disabilities 55Lauraine BarlowChapter 6. Disability in Arab Societies 63Numan GharaibehChapter 7. We Can Cry Later: A Story of Surviving Cancer 81Paige StagerChapter 8. Disability as a Human Perception: Personal andProfessional Reactions to American Indian Families'Narratives about Their Children's Disabilities 87R. Cruz Begay, Betty G. Brown, and Roger G. BoundsChapter 9. Traumatic Brain Injury and Disability as aConsequence of Assault: Focus on IntimatePartner Violence 107Rosalie J. Ackerman and Martha E. BanksChapter 10. "I Thought I Was Going to Live Forever" 123Reva Mariah S. GoverChapter 11. Coping Following Traumatic Brain Injury:Lessons from Autobiographical Accounts 129Elizabeth Kendall, Melissa Kendall, andHeidi MuenchbergerChapter 12. Functional and Psychosocial Aspects of Late-OnsetHearing Loss 143Charlene M. KampfeChapter 13. Disability in Islam: Insights into Theology, Law,History, and Practice 157Isra Bhatty, Asad Ali Moten, Mobin Tawakkul,and Mona AmerChapter 14. Living with a Learning Disability and OtherMarginalized Statuses: A Multilevel Analysis 177Katherine E. McDonald, Christopher B. Keys,and Fabricio E. BalcazarChapter 15. Persons and Nonpersons: Intellectual Disability,Personhood, and Social Capital among the Mixeof Southern Mexico 193George S. Gotto IVChapter 16. Sharing My Strengths and Winning against Obesity 211Michelle PieperChapter 17. The Discursive Construction and Invalidationof Disability 213Stephen Lee Hodgkins and Sid BailityChapter 18. Shubharthis in India: DestigmatizingSchizophrenia, a Move toward Inclusion 231Anuradha SovaniChapter 19. Excerpts from Meditations of the Heart on theWorkings (or Not) of the Hand 243Bernadette Blount SalleyChapter 20. A Taonga Is a Taonga in Any Language 249Huhana HickeyAfterword: Reclaiming Globalization for Disability—Further Insights 257Index 267About the Advisory Board Members 273About the Editors and Contributors 277Disabilities V2Foreword ixThomas BornemannPreface xiiiPaul LeungIntroduction xixChapter 1. Creating Mental Health Disability throughInadequate Disaster Response: Lessons fromHurricane Katrina 1Paula A. Madrid, Roy Grant, and Rachel RosenChapter 2. Autonomy and Disability: A Quest for Quality of Life 17Bedarius Bell Jr., Shelley R. Henthorne, Doris AdamsHill, Jane W. Turnbull-Humphries, andStephanie T. ZitoChapter 3. Children Who Care for Their Parents: The Impactof Parental Disability on Young Lives 39Kenneth I. PakenhamChapter 4. The Digital Town Square: Information andCommunication Technology as an Opportunityand a Barrier to Social Relations for Disabled Youth 61Sylvia SöderströmChapter 5. Understanding the Experience of Parenting aChild with Autism 81Samantha Bursnall, Eilis Kennedy, Rob Senior,and Jo VioletChapter 6. Through My Rose-Colored Glasses:When Disability Strikes a Health Professional 99Melissa KendallChapter 7. Australian Indigenous Health and the SIPESModel of Well-Being: The Legacy of Lauraine Barlow 111Leda Barnett and Dianne BarnettChapter 8. "Surely Someone Can Support Me":A Caregiver's Perspective 129Tara Catalano and Debra DomalewskiChapter 9. Navigating Societal Norms: The PsychologicalImplications of Living in the United Stateswith Disability 139Jennifer GibsonChapter 10. Disabilities and Employment in the United States,Kenya, and the Philippines: A Race and ClassPerspective 151Elaine A. Burke and Patricia Denise LopezChapter 11. Youth with Intellectual Disabilities in Foster Care:Examining Accompanying Risks and ServiceOutcomes 169Crystal L. Cederna, Melissa Palguta, JacquelineRemondet Wall, and Steven M. KochChapter 12. Mental Disorder, Disability, and Society 185David Pilgrim and Anne RogersChapter 13. Parental Perspectives on Disability:The Story of Sam, Anna, and Marcus 201Heather Douglas and Sally BorbasiChapter 14. Bullying of Children with DevelopmentalDisabilities: An Ecological Approach to ProgramDevelopment 219Rocky LiesmanChapter 15. Mosaic Refl ections of American Muslims onDisability: Challenges and Solutions 239Mobin Tawakkul, Isra Bhatty, and Mohammed YousufChapter 16. Voices of People with Disabilities (PWD) in Vietnam 257David N. MorrisseyChapter 17. Substance Use Disorders and Disability:An Examination of Co-occurring Disorders in Nigeria 275Stephanie L. Lusk and Teresia M. PaulChapter 18. Chasing Your Dreams 289Connie SusaAfterword: Reclaiming Globalization for Disability—Further Insights 301Index 311About the Advisory Board Members 319About the Editors and Contributors 323Disabilities V3Foreword ixThomas BornemannPreface xiiiPaul LeungIntroduction xixChapter 1. Evolution of Disability Policies and Practices in theUnited States: Implications for Global Implementationof Person-Centered Planning 1Carol J. Blessing, Thomas P. Golden, andSusanne M. BruyèreChapter 2. Global Networking, Social Justice, and Implicationsfor Chronic Illness and Disability 17Elizabeth Kendall and Catherine A. MarshallChapter 3. Disability in the State of Qatar 27Asma Al Attiyah and Marcellina MianChapter 4. Attitudes toward Inclusion in Primary Educationin Greece 43Maria Agorastou, Efrosini Kalyva, Efthalia Kaderoglou,and Filippos StefanidisChapter 5. Vocational Rehabilitation at a Cancer Agency inCanada: A Pioneer and Model Service When CancerResults in Disability 63Maureen ParkinsonChapter 6. Mental Health Care in Turkey: Present Status andFuture Directions 83Rebecca Spirito-Dalgin, Tuncay Ergene,Joseph Marrone, and Kerim MunirChapter 7. What's All This about a "World" Wide Web?The Need and Mandate for Web Accessibility 95Joe E. Wheaton and Patrizia BertiniChapter 8. Disability, Legal Mobilization, and the Challengesof Capacity Building in Sri Lanka 111Fiona Kumari CampbellChapter 9. Disability Management: A Global Response toDisability in the Workplace 129Nicholas Buys and Christine RandallChapter 10. When Systems Hurt Rather than Heal: OutcomesFollowing Pyschological Injury at Work 145Elizabeth Kendall and Heidi MuenchbergerChapter 11. Equal Treatment in Working Life for People withDisabilities: Sweden and Norway Perspectives 155Marianne Hedlund, Bodil J. Landstad, andÅsa SvenssonChapter 12. Wellness Rhetoric: Implications for Policy andPractice in Australian Childhood Health andDisability Services 167Lauren J. Breen and Sherry SaggersChapter 13. Health Care, Disability, and Living with ChronicIllness: Rehabilitation and Beyond 181Marie A. DiCowdenChapter 14. Acting for Advocacy: An Innovative Team TrainingApproach to Self-Advocacy 201Deborah Zuver, Robyn Dorton, Wilson Finks, andKira FisherChapter 15. International Accessibility: Refl ections on the Valueof Disability Rights Law, Based on Travel to Athensand Rome 215Angela Kuemmel and Rebecca KuemmelChapter 16. Disability Policy—A Canadian Perspective:A Human Rights Approach to Providing Supportsand Services 227Cheryl L. CrockerChapter 17. Advocacy in the 21st Century: An Integrated Modelfor Self-Advocates, Parents, and Professionals 245Steven M. Koch, Katy Beggs, Joy Bailey, andJacqueline Remondet WallChapter 18. A Journey of Self through the Lives of Others:Historical Removal, Displacement, and SanctionedInjustice 267Rae KellyChapter 19. States of Exceptionality: Provisional Disability,its Mitigation, and Citizenship 273Fiona Kumari CampbellChapter 20. Disability in Kenya: A Situational Analysis 285Edward O. Manyibe, George I. Mamboleo,George C. T. Mugoya, and Charlene M. KampfeChapter 21. Changing the System: "Strong IndigenousWomen—We are the Voice" 299Robyn BurnettAfterword: Reclaiming Globalization for Disability—Further Insights 305Index 315 About the Advisory Board Members 325About the Editors and Contributors 329



". . . an impressively comprehensive three-volume compendium of information about human physical and mental disabilities, grounded in exhaustive academic, field, and cutting-edge research. . . . . an exhaustive, in-depth reference enthusiastically recommended for college library and professional practice reference shelves."Midwest Book Review

"This three-volume set for practitioners, scholars and general audiences features essays that focus on positive approaches for short and long term disability and provide optimistic perspectives on social inclusion that are heralded in the field as an exciting advance. Editors Marshall (educational psychology, Northern Arizona U.), Kendall (health and medical research, Griffith U., Australia), Banks (clinical psychology, U. of Rhode Island) and Gover, an independent writer and consultant, separate these volumes into experience (the definitions, causes and consequences of disability), responses (practice, legal and political frameworks) and context (environmental, social and cultural considerations). Leading experts contribute research and essays on such topics as the challenges of cancer survivors, 'winning' against obesity, mental health disabilities caused by inadequate disaster response, the evolution of disability policy in the United States and global network capabilities for chronic illness and disability."Reference & Research Book News

"This three-volume set gives a timely presentation of multidimensional, multidisciplinary, and multicultural perceptions and management of disabilities. . . . All the sources demonstrate the most recent developments in different but related fields, and are seamlessly organized and presented as a holistic picture of current disability studies in the world. This pioneering work integrates multiple disciplines in disability studies and should be added to all academic libraries. . . . Essential. All levels/libraries."Choice

"Disabilities fulfills the mission of Perspectives volumes admirably, compiling essays and scholarly chapters that represent a wide range of perspectives varying across types of disabilities."PsycCRITIQUES


Outstanding Academic Title, 2009 — Choice

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